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Chronic pain after craniotomy

Brain Tumor | Last Active: 6 days ago | Replies (4)

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@supernorva

I had a craniotomy ten years ago when I had micro vascular decompression surgery for trigeminal neuralgia. I was 28 when I had the surgery, 38 now. I have been dealing with chronic pain on my scalp around the incision and chronic tightness in my neck. I can literally feel my neck muscles constantly being pulled up towards the scar area. NO doctor has been able to give me any answers. I was already taking lyrica for fibromyalgia. I’ve done trigger point injections and monthly massages. I try to massage the area of my scar but sometimes it’s much to painful to even touch. My guess is that they damaged the nerves when they stapled my scalp back together. I have been searching for ten years for someone else who has also experienced this. Sadly I found someone. Sorry you’re also going through post craniotomy hell.

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Replies to "I had a craniotomy ten years ago when I had micro vascular decompression surgery for trigeminal..."

Supernorva: Approximately how long after the craniotomy (when you were 28) did you start experiencing the pain symptoms?

It's so frustrating. I know this isn't a common occurrence but it is an occurrence. It seems like someone should be able to figure out a treatment plan.
I hate to hear it has been 10 years for you.