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Chronic pain after craniotomy

Brain Tumor | Last Active: May 1 10:30pm | Replies (14)

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@supernorva

I had a craniotomy ten years ago when I had micro vascular decompression surgery for trigeminal neuralgia. I was 28 when I had the surgery, 38 now. I have been dealing with chronic pain on my scalp around the incision and chronic tightness in my neck. I can literally feel my neck muscles constantly being pulled up towards the scar area. NO doctor has been able to give me any answers. I was already taking lyrica for fibromyalgia. I’ve done trigger point injections and monthly massages. I try to massage the area of my scar but sometimes it’s much to painful to even touch. My guess is that they damaged the nerves when they stapled my scalp back together. I have been searching for ten years for someone else who has also experienced this. Sadly I found someone. Sorry you’re also going through post craniotomy hell.

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Replies to "I had a craniotomy ten years ago when I had micro vascular decompression surgery for trigeminal..."

Supernorva: Approximately how long after the craniotomy (when you were 28) did you start experiencing the pain symptoms?

It's so frustrating. I know this isn't a common occurrence but it is an occurrence. It seems like someone should be able to figure out a treatment plan.
I hate to hear it has been 10 years for you.

I had 2 MVDs last year for TN and this 2nd time, I also have pain around the area of entry. I also have strange temple pain and recurrence of v1 pain. I had an MRI last night and meet with my surgeon today- but I am going to get a 2nd opinion at the Mayo in Phoenix as I live in chicago. Have you had any improvement since?