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@ray666

Hello, agiordano (@agiordano)

And welcome!

What sort of diagnosis have you already received? Was it as a result of an EMG? Is it that word "idiopathic" that has you asking for more? It was for me, too, way back when I received my diagnosis. At the time, all my neurologist was able to say was "idiopathic polyneuropathy."

Like most of hit with the word "idiopathic," we want to know the cause––even though we're given to understand that "idiopathic" means the cause is unknown and likely to remain so. Since getting my diagnosis, I've learned a bit more about my disease; it's idiopathic large-fiber, predominantly sensory (with a touch of the autonomic) polyneuropathy.

That helps me manage my neuropathy going forward, but as for looking backward and knowing its cause? I've learned to accept that I'll likely never know.

I wish you success in solving the mystery of your own personal neuropathy as may be possible!

Cheers!
Ray (@ray666)

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Replies to "Hello, agiordano (@agiordano) And welcome! What sort of diagnosis have you already received? Was it as..."

Yes had EMG from two different neurologist. only told idiopathic possibly hereiditary no mention of small or large fiber or what ever other varitions there are. I want to know whats being damaged so I can concentrate my effects in finding relief

Thank you Ray.
Your insight has been invaluable thank you very much for your input.