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@jw9

Hello @vickimartin , I was 34 when I had acinic cell carcinoma, R. parotidectomy. The margins weren't clear, as the tumor was spreading onto my face. This was 1994. The radiation was harsh, doctors tell me that now. I lost all my hair on the back of my head and it didn't come back! Good thing I like short hair and was just glad to be cancer-free.
I lost my hearing for almost a year after that. Now I have learned to cope with tinnitus and hearing loss requiring hearing aids. I'm just grateful for all I can do to cope.
I've learned that while illness informs my life, it doesn't define me.
My mouth gradually (a couple of years) became easier to talk and speak. However I have the same problems everyone has mentioned with swallowing. (Plus I have Sjogrens Syndrome, autoimmune illness. This causes dry mouth also, )
For everyone: The best thing I've learned is to give myself time to cope with new symptoms. In time, they become part of my day. I don't focus on symptoms the same way once I get information and take care of basics!

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Replies to "Hello @vickimartin , I was 34 when I had acinic cell carcinoma, R. parotidectomy. The margins..."

My husband is experiencing the dry mouth as well L parotidectomy, stage 4 which was 6 weeks after first symptom. We voted today and he was saying his lips were stuck to his teeth. We both just laughed because I've had Sjögren's syndrome for 30 years and today was the day I didn't have water in my purse. We looked goofy walking to the car with teeth showing!! He did let me know he doesn't want to experience any other symptoms of the autoimmune diseases I deal with. I said deal, then we grabbed the water from the car. Thankful for each day!