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@jw9

Hello,
This is a fascinating thread for me, I hope to find more of the same. When I was 34 I had
R parotidectomy for acinic cell carcinoma. The margins weren't clear, the tumor was spreading into my face. I was given 2 choices: go back to surgery in 2 weeks, or radiation treatments. Now I realize I had terrible anxiety and couldn't face surgery again, I chose radiation.

As @sepdvm says, these symptoms are gradual and ongoing over time. I lost all of the hair on the right back of my head. This made me realize my brain was involved. I have other health issues that might affect brain fog. I think my way of dealing with that is to push myself. Maybe that is what @sepdvm meant by brain plasticity. I lost my career as an RN in oncology and became a poet and yoga therapist. My biggest difficulty has also been hearing loss on that side and last year I got hearing aids. I have a challenge with tinnitus and have been told it is from damage to the nerves in my neck.

I also have lymphedema on that side of my neck from time to time. I went to a specialist to learn self-massage. I have incorporated my disabling chronic illnesses into/not separate from my life. They inform me but do not define me.
Thank you to everyone for their helpful comments.

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Replies to "Hello, This is a fascinating thread for me, I hope to find more of the same...."

@jw9 .Do you suffer with chronic migraine along with the tinnitus? I’m 8 1/2 years post treatment and have been receiving Botox for my migraine over the past few years. Last week my PA decided since I have no relief from the migraine she will inject my Botox into my neck (back and front) because my neck is extremely tight due to radiation. Anyway, that was last Wednesday and I have slept so much better since then. She also had me purchase a Shiatsu neck and back messager from Amazon ($26.00). I used the messager Thursday night and Friday morning, yes it hurt like hell but in a great way if that makes sense.?
I’ve been living with a 9-10 pain level for my migraine and neck, no my neck is probably a 3 and migraine is more like a chronic headache…. I hope it remains that way! As for tinnitus, it’s still there and as loud as ever! 🤷‍♂️
I noticed that you are no longer working as a nurse, I too was not able to return to my profession and had to go on disability. Many people don’t understand how cancer and treatment affects everyone differently. Even simple things like cleaning house, lawn care, snow removal etc take a toll on our bodies. Anyway, at least we are Alive!
MOJO