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Lichen Sclerosus: Any other women dealing with this disease?
Autoimmune Diseases | Last Active: 6 hours ago | Replies (337)Comment receiving replies
@fdixon63 I’ve not had any experience with LS so I can’t really answer your question. But, from a nurse’s point of view, if you use your fingers to apply the oil to yourself or a pad, cleanliness is very important. Make sure you wash your hands well before and after! If using olive oil, have a bottle for your use only. Don’t use bottle for kitchen and yourself! You want the labia to heal, not get infected! If the urine burns the labia, there are OTC medicines that numb the area, making it easier to pee.
Overall, are you happy with the surgery?
Replies to "@fdixon63 I’ve not had any experience with LS so I can’t really answer your question. But,..."
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Thanks for your post Becky. I do make sure to wash my hands before touching the area. I have enough to deal with without introducing infection. My primary (nurse practitioner) said that I could use antibacterial soap once in awhile. I've not done that as I'm afraid it would cause the tissue to flare as it is soooo sensitive. I'm wondering if any LS sufferers have used antibacterial soap. The surgeon (GU/GYN) said I need to use estrogen cream every day the rest of my life. It hit me a few days ago that Clobetasol was what I'd used for about 2 years, alternating with estrogen cream. So, two nights I used the Clobetasol (no estrogen cream) and the same again last night. I can see an improvement today. I've got to figure out what is going to work for me to get my LS stabilized and use the estrogen going forward--probably getting back on my former regime.
Now, am I happy with the surgery? The ability to pee again has been great and actually having an vaginal opening is something I've not had for a very long time. If I can get the pain under control, life would be good. What is the OTC med you talked about to numb the area?