Hello @kenb58,

I agree with @colleenyoung, about having a list of questions to ask at your upcoming appointment. If you would like some help in approaching your 4/21 appointment, I'd encourage you to read a Connect discussion on the topic of "Keys to a Successful Doctor's Appointment." Here is the link to that discussion which also includes a video, https://connect.mayoclinic.org/discussion/keys-to-a-successful-doctors-appointment/

Here is a listing of NET specialists throughout the country, https://www.carcinoid.org/for-patients/treatment/find-a-doctor/. It is always a good idea to have at least one consultation with a NET specialist. Often a virtual appointment is possible and then the NET specialist can work with your local oncologist to develop a treatment plan that is best for you. The NET specialists at Mayo Clinic are listed in the link above. If it is possible to consult with a Mayo specialist, here is a link with appointment information, http://mayocl.in/1mtmR63.

I look forward to hearing from you again. Will you continue to post with your questions and concerns?