← Return to Progressive supranuclear palsy (PSP)

Discussion

Progressive supranuclear palsy (PSP)

Brain & Nervous System | Last Active: Apr 20 8:29am | Replies (12)

Comment receiving replies
@rockwood

Hi, is the group leader still there?

My husband was diagnosed PD in 2020 but maybe two years ago his neurologist began to suspect that he might have PSP. He was even tested by a specialist who gave him all sorts of tests and watched his eye movements, etc and concluded he did not have PSP a year ago. But a recent brain scan (March 2025) indicated loss in mid brain which is an indication of PSP. His symptoms also matched 80%, including tending to fall backwards, pain around his neck and incontinence. He also has severe problem in initiating his first steps, but once he gets started he can walk a few thousand steps outdoor without a walker. Do all the symptoms sound familiar to anyone?

Jump to this post


Replies to "Hi, is the group leader still there? My husband was diagnosed PD in 2020 but maybe..."

@rockwood PSP, yes I’m on my way for an official diagnosis myself.
I have had movement issues, double vision too. It is not Parkinson’s, but it is referred to as a Parkinsonism Disease because the 2 diseases have similar traits.

I also have FRONTOTEMPORAL Dementia.

There are YouTube videos that are very informative.