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DiscussionNew Diagnosis: husband's labs are all indicating NET
Neuroendocrine Tumors (NETs) | Last Active: Mar 31 5:16am | Replies (49)Comment receiving replies
Replies to "Hello @sandy23, As it has been a while since you lasted posted, I was wondering how..."
Hi Teresa,
Hubs is currently stable. His treatment is the Sandostatin/Octreotide. It appears that when his stress level is high the cancer likes to grow and spread. Since he has not been stressed out he has stabilized. A side note to anyone who has done the Lutethera treatment. During his treatment I noticed that his short term memory was not good. (I think I mentioned this in the post when he was having the treatment or shortly thereafter). Supposedly this is not a side affect of the Lutethera however, who's to say it's not? It's a fairly new treatment and maybe it's one to add to the list.
Anyway, he had been checked out by a neurologist and he said while that is not normal and he didn't remember some of the minor tests he gave him, the blood work and scan was normal. So the question is, is this a side affect of the Lutethera? Long term use of Sandostatin? Or something else? 🤔 I digress..
Apparently the protocol after Lutethera is CT and MRI scans alternating every 3 months with the Dotatate pet scan on a yearly basis. Which he has been having done for the past year. The surgical Oncologist stated there is still cancer in his liver and some lymph nodes and other places that he will watch for growth. Other than that he's doing well. He's actually talking to the orthopedic Dr about having both knees replaced. Go figure. Working on clearances from all of his doctors.
How are you doing? And thank you for asking.