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Changing Physicians after being seen

Aging Well | Last Active: 11 hours ago | Replies (25)

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@sillyblone

I totally agree. I take my spouse to his physicians and he wants my input. My spouse has gotten alot of suggestions through the year's and he always wants the best that he can imagine. He always looks at me if the physician asks him a question which means "help I am not sure what is being said or why they want this test or medication". I am a firm believer that he deserves the best and if he needs my input I will ask a leading question. We have been told outrageous comments at times. We will if needed get a second opinion. Arrogance annoys us both.. We are not physicians , but we do our homework and continue with trying what works. We finally received a referral to movement disorder neurologist. I asked for several yrs. for this referral. I mean since 2018. I found out by researching that the YMCA could be a perfect fit for my spouse as he has Parkinsons and he flourished. I was upset that this was not suggested. The reason was given was that it was not needed. He can join a boxing group and that was it. It was right after his diagnosis. I continued off and on asked about the movement specialist to no avail. We met the neurologist that was replacing the Dr. we had gone to and it was one of the first things that was asked of us. Go figure.He was diagnosed in 2018. Almost seven years later we get a referral. It was ridiculous. He was able to workout with me and I helped keep on task. We saw other's who were dealing with the same thing at different stages. Imagine that. I could not wait to speak about it at his next appt. I cannot tell you that the Dr. was not qualified because he was. He just should stay informed and know what a patient can benefit from. I will be respectful...but don't just push pills and do a neuro check and that's it. I know my spouse better than anyone. He will get help when he needs it. By the way we are not seeing the specialist until June. He will get the best care as long as I am able. Thanks for your comments. Hugs from his wife.

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Replies to "I totally agree. I take my spouse to his physicians and he wants my input. My..."

Hi Sillyblone,
You are doing all the right things for your husband! The research, accompanying him to appointments and being involved. That's wonderful! You have the right attitude also. You want what's best for your husband which isn't always what the doctor recommends. That whole issue about trying to get him a specialist and not being able to and then finding out you could get the same result at the YMCA must have been very frustrating! I'm glad the YMCA worked for your husband! The doctor probably didn't suggest the YMCA because it wouldn't make the medical association any money. Unfortunately medicine has become consumed with making a profit. I saw that with my husband's cancer. When he refused to get anymore Keytruda infusions at $25,000 per infusion because he almost died from them, the cancer doctor became angry! After all, my husband's insurance had just approved 6 more months of Keytruda! Needless to say, we changed cancer doctors.
I hope the new specialist you are going to see works well for your husband. It's so good that you get involved with his care. I'm sure you will see that the new specialist does his best for your husband. I like to think that my involvement with my husband's care was part of the reason he lived 14 years with lung cancer. Prayer also helps. We all need God's help.
I'll say a prayer for the both of you.
PML