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Life while being treated

MAC & Bronchiectasis | Last Active: 6 days ago | Replies (53)

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@winema

I've watched the youtube video you recommended, learned a lot, and don't understand why not one single doctor over the past 13 years has recommended airway clearance!! The breathing exercises seem important. I'm really impressed with the stats regarding nebulized hypertonic saline and the resulting decrease, for many people, in bacterial load. Can you, or others, recommend a portable nebulizer brand? Safe to buy from Amazon? Or? And, how much saline does one typically go through when using the nebulizer once a day? Thank you very much for your help!

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Replies to "I've watched the youtube video you recommended, learned a lot, and don't understand why not one..."

I'm sure Sue and others will comment soon, but for travel, you can't beat the Pari Trek S, which you can buy on Amazon but a variety of other sources too. Just shop the best price. It's the one I use when I travel and hike. I bought the battery so I can carry it in my backpack when we're out for overnights away from power (with two batteries I could stay out a week easily). It also comes with an adapter to use in a car.

At home, I still use a tabletop Ombra, but a lot of folks I know solely use the Pari S.

Laurel

Many people use the Ombra or Pari Pro Neb Max which are the compressors that nebulize (create the aerosol or mist) by pumping air through the liquid placed in the "cups" which are called nebulizers. There are several different types of nebulizers (cups). Sometimes we have to try a few different types of brands to find one that we like. Many people use the Aeroclipse XL BAN, some like the Pari Sprint or others. Make sure to read the info before purchasing to see that the cups (nebulizers) state that they are reusable after cleaning. I listed a couple of websites to get started with. There are several other medical companies online that carry these products.
https://www.saveritemedical.com
https://www.pari.com

FYI - I can only get one nebulizing session out of the Pari trek battery. Luckily we have a camp that has a solar powered charger. I have to charge it after every session.