There is a private fb group called myempd, get on it, it is a wealth of information. It has changed my life to have the support with others. You will hear some inspirational stories that will encourage you to keep seeking answers. This is what is helping me. I see a new Dr this week. I ebb and flow with my progress. As to what Drs tell you...they just dont know and everyone seems to be a bit different.

I had surgery/chemotherapy/radiation for vulvar cancer and finished treatment in March 2023. I still suffer from sensitivity down there and am told this is my new normal. I have found the donut cushions help with sitting. I hope this helps. Boette