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← Return to Life while being treated
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I am "on a break" from saline nebs unless I detect an issue - for example, it is tree pollen allergy time, so I will begin nebbing 1-2 times a week as a protective measure.
My airway clearance is Breyna (generic Symbicort) inhaler, a glass of water, then my coffee, followed by one of these - 30 minutes yoga, a brisk walk followed by huff coughing, or pattern breathing with Aerobika. I don't even know what you would call my pattern, a combination of deep breaths, holds, coughs, Aerobika if needed, and if the mucus is stubborn some inverted poses. If I'm using saline, it's after coffee and before clearance.
So my airway clearance is integrated into my morning routine and takes about 10-20 minutes after yoga or walking. How far do I walk? 15 minutes to an hour depending on weather and time I have.
After that I have breakfast.
(Not shouting here, just emphasizing) I DO NOT TRY TO GET EVERY DROP OF MUCUS UP THROUGH AIRWAY CLEARANCE BECAUSE I WOULD NEVER BE DONE. I expel mucus throughout the day with huff coughs and spitting or swallowing just like I have done for most of my life.
I am not prescribing my method for anyone else, just telling what works for me. Everyone needs to find a method that works for them and can integrate into their life. It took 5 years of trying things to get here, and I know it may need to be adjusted if my BE gets worse or I get MAC again.
This is the only way I can possibly keep this up for going on 7 years now. When I have an episode, I do this twice a day, but it's very rare right now.
Replies to "I am "on a break" from saline nebs unless I detect an issue - for example,..."
Sue- This helped me to hear this because of what I go through each day.
" Not shouting here, just emphasizing) I DO NOT TRY TO GET EVERY DROP OF MUCUS UP THROUGH AIRWAY CLEARANCE BECAUSE I WOULD NEVER BE DONE. "
For some reason with all your posts I didn't picture, think, it is this way for you, " I expel mucus throughout the day".
Knowing that you do " huff coughs and spitting or swallowing just like I have done for most of my life" helps me in my understanding.
My mucus is so thick and as such I have a hard time swallowing it when I have tried to swallow it. What I find myself having to do is bring it up by way of sucking it up and out or huff coughing throughout the day. I believe you take Mucinex and NAC. I wonder if the reason you started taking it was to thin it out so you could swallow it.
I am so frustrated with it being, what I would call, stuck in my throat the majority of time..... meaning all hours of the day and at night when I wake up to do what my bladder tells me it needs to do. I do end up getting it up and out only for more to immediately form in the throat again causing me to clear it out nearly all day long.
With all you have read in the posts through the last six or seven years do you think this is common, than not, for us with BE??? Throat clearing because of what one feels in the throat???
Thank you Sue for sharing.
Barbara
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Thank you Sue! Very interesting, I do hope you continue to keep MAC at bay. I find aerobika hard to use, I get very tired. Am supposed to do 100 times a day, I only manage 30. Then I’m puffed and I feel vibration sensation in eyes, very weird. I use to be able to cough and huff up small amounts most afternoons. Since starting meds 2 months ago, nothing comes up. I was wondering if saline nebs might help. I also have bronchiectasis. The only time I cough copious amounts is when I have an infection of sorts. Anyway, thanks for sharing, I will have to persevere with airway clearance.