I received the first one with a second one about 2 weeks later. Then it was supposed to be another one in 6 months. I tried weaning from the steroids after month 4 and my symptoms returned, and I had to go back on the steroid to control the flare and haven’t managed to get off them yet (another trial wean that started in January on Cosentyx very badly this time - less pain so it is doing better than any of the biologics to date, but significantly more weakness).

My rheumatologist has me seeing a neurologist just to ensure there’s nothing else going on and then we’ll reassess and hopefully add something to the Cosentyx and Methotrexate to see if I can lower the Medrol dose. It’s frustrating as the Medrol destroyed my corneas, and I see my blood sugar rising with each visit 🙁