← Return to NePtune Trial and surgery questions

Discussion

NePtune Trial and surgery questions

Prostate Cancer | Last Active: Mar 28 5:35pm | Replies (5)

Comment receiving replies
@jmacpa

Thanks for your feedback.

The trial I'm in is pretty strict on what you can and cant take. I'm not allowed to take any herbal supplements - which i did before this started. I can only take a daily vitamin and a vit D (because i'm deficient). My onco asked about taking Black Cohosh tea for hot flashes - they told her no. She had some other prescription drug suggestions but i turned them all down and said i'll deal with the hot flashes. i'm not big on taking any drugs unless they are 100% necessary like the lupron/olaparib combo for cancer.

I heard a doc on a broadcast say that once you go over 5 meds its almost impossible to predict the interactions because they cant possibly test of all of the possible drug combinations. my dad who passed away a few years ago at 85 and was on 19 meds - I'm sure those were playing havoc with his body. my mom is 90 and is on NO meds - NONE. docs are floored when they ask her and she says she takes nothing.

hopefully i can make it another 4 months without the olaparib doing too much to my counts because i would like to finish the trial to get the best results before my surgery.

I did read about testicles getting smaller on Lupron but i just didnt realize by how much. it sucks but i'm hoping everything comes back when i'm done. from what i read it should but the recovery time for your testosterone seems to vary - i've read from 6 to 18 months. hoping its not 18 months but if it is i'll deal with it.

i am also lifting weights, in group exercises. and walking so i'm keeping active and my doc said its important to that and it should help with the hot flashes. I"m 66 so i'm not exactly young but i'm not too old for the prostate surgery option. i'll update here as i move along the process - surgery is scheduled end of July a few days after the trial ends.

Jump to this post


Replies to "Thanks for your feedback. The trial I'm in is pretty strict on what you can and..."

A couple of guys have said that eating tofu daily prevented them from having hot flashes. When mine were the worst, I had depo-provera shots and they worked real well. Not sure how long you’re going to be on ADT, Since it sounds like only a few more months, you should have no problem with hot flashes long-term. There a device I use, the Wave 2 by embrlabs.com. It works well for a lot of people, but not for everyone. It was great to stop the night hot flashes. Have you had a quick enough and stop the day ones but if nothing else, it reduces the intensity..