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Anyone here dealing with peripheral neuropathy?

Neuropathy | Last Active: 13 hours ago | Replies (3124)

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@kimmykat

I have neuropathy in my feet, calves, and hands. I take gabapentin but it doesn't do much. I also had a laminectomy in left side of my back due to leg cramping and seizing up and causing excrutiating pain. It didn't helpmy leg. It went more numb or dead as I call it because it really is dead. Plus, before I had that surgery, they tried a shot, which didn't work and caused my right calve to die also. Now its in my hands. I don't know what to do, it's just getting worse. I feel I will eventually be in a wheel chair. Doctors just give meds with and tell you to cut out sugars. It's unbelievable there is no real help here. I am in Wyoming.

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Replies to "I have neuropathy in my feet, calves, and hands. I take gabapentin but it doesn't do..."

You need to see a good neurologist to totally manage your neuropathy.

The only true help is IVIG getting a doctor to prescribe it is an act of congress. What neurologist do not tell you is that it is progressive. Neuropathy moves to anywhere in your body that has nerves. It has moved into my heart. It either beats too slow or too fast. It causes your blood pressure to go up and down. I lost feeling in my hands a couple of years ago. Constantly, cutting them and they bleed I can’t feel it until I look down and blood is everywhere.
IVIG helps with nerve regeneration. Mine is autoimmune neuropathy and I can’t tell the difference between when I take it and when I don’t.

Hi !
I am a Diebetic II for seven years and neurology pain with tingling, nerve strikes and finally numbness started 5 years ago. Started in feet, then grew to calves, thighs then hands/fingers…

I have seen many doctors and specialists but there is no cure as they prescribed gabapintin, juniva, etc… I also tried many creams to ease nerve pains. Icy hot was the only one that helps a bit.

After thousands of dollars, doctors do not have a cure for it. It’s sad that i have live with such discomfort and pain for rest of my life. I’m 58 and plan to retire at 65. I cry cause my golden year’s retirement won’t be as enjoyable as it should be!

I only had wished that doctors would said “no cure” but make patients believe that they can help….money is taken from you and it’s so extremely sad !

I wish you the best!