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TNBC Survivors with adrenal insufficiency

Breast Cancer | Last Active: Apr 1 12:27am | Replies (7)
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@nicolesj

Funny, my oncologist told me that aquiring AIs was very rare. I'm finding that's not true. TNBC, neoadjuvant chemo and immunotherapy, got extremely ill so oncologist dropped my doxorubicin and continued my Keytruda. Got more I'll until labs showed I have secondary adrenal Insufficiency and hypothyroidism. Got medication, had masectomy, got sepsis, lost weight and ta da. Now I'm having all over aches in legs and knee pain plus dry eyes and mouth, cluster heaches and mild hallucinations in dark rooms. Went to ER for new warm redness on my unresolved seromas on ribs, below incisions and smart doctor loaded me with antibiotics to avoid more sepsis. So, do you think it's a rough patch or beginning of a third AI disease There's no one doctor that wants to dive in for me. I'm a happy person..but also like to move forward as to avoid future complications.
Anyone like me out there?

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Replies to "Funny, my oncologist told me that aquiring AIs was very rare. I'm finding that's not true...."
moshi | @moshi | Apr 1 12:27am

Keep advocating for yourself… 100 times over and again. The squeaky wheel gets the grease is a fact… especially with tnbc. If I hadn’t squeaked really bad, my diagnosis and treatment would’ve been a bigger challenge….I’m a 2a tnbc club member, bilateral mastectomy with saline implants at surgery. Jan 23rd 2025. Drains on each side for 3 weeks.. and an incision infection that caused another surgery for descaling and cleaning… ended up healing without taking my implant out.
Chemo lowers healing for mastectomy… with or without implants. Started dose dense chemo treatment march 10th and just finished 4th taxol of 12 weekly, then will do doxorubicin and cyclophosphamide biweekly x4. I’m doing pretty good now. I lay low and keep focused on my needs. We are fighting for our lives. Screw everything else. EAT FIGHTING FOODS.

With AI, I read it causes stress and immflamation. Food like quinoa, chia seeds, hemp hearts… check out ginger… I drink homemade tea all day long. You may need to adapt to liking it. Add other tea with it… no caffeine .
Do your research until you’re comfortable that you’ve done all you can. And then do more. And no benzodiazepines if possible…
Tnbc responds to nutrients and drugs differently than positive breast cancer drugs. Not sure why your doc dropped the doxorubicin and kept keytruda… I’d rather blame keytruda and go with gold standard. This beats a body up either. Keytruda is not tried and true… just sayin’.
Be strong, be brave, be beautiful..
I know you are sister…
Peace

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