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Low dose naltrexone for Post-Covid Recovery experiences?
Post-COVID Recovery & COVID-19 | Last Active: Apr 13 7:07pm | Replies (92)Comment receiving replies
I’m interested re. your last comment about ’compounded thyroid med’ suggesting your are hypothyroid and likely Hashimoto’s too? A Dr.Lowe ( now dead) who specialised in hypothyroidism believed under medicated T3 lead to fibromyalgia…but his protocol did not work for me. I have both thyroid ailments , plus fibromyalgia (and type 3c diabetes from septic shock/ acute pancreatitis), and had LC nearly 5 years. I tried LDN and cannabis oil before LC but no obvious change to pain/ fatigue, now LC has made the fibromyalgia worse and I’ve got dysautonomia ( postural hypotension with syncope, but high HR too), no sense of smell.…tried a wide range of LC supplements/ drugs without improvement and currently trying ‘low and slow’ vagus nerve stimulation device. I’ll give the vTENS device a good trial, and if no improvement will try LDN again. It’s so slow to try to do one hopefully improvement one at a time!
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Hi, sorry took me so long to respond, but you probably understand, with long covid and having to pace myself, that's just the way it is. I am on compounded T4 50 mcg/T3 10 mcg. I have been on it for a number of years. The Doctor who put me on it is now retired as of 2023. He added the T3 as I remember due to fatigue, I don't think it had anything to do with improving my Fibromyalgia. I know he was very cautious with T3, too high a dose can cause heart palpitations. I am actually wondering if my dose should be adjusted since getting Long Covid, maybe it is contributing to my diagnosis of Inappropriate Sinus Tachycardia? I do not have a doctor that would even know how to interpret the results anymore. The doctor that took over for him extended my current prescription and am meeting with him again in June, hopefully he's learned something about it. The thyroid med never helped with Fibromyalgia, but did help my energy level. Of course, Long Covid changed that, energy level is up and down. I tried Vagus Nerve Stimulator also, actually increased my anxiety, I don't do well with electrical devices, even grounding mats, so sent it back. I know some people are helped by it. Breathing exercises help me more. Cannabis made me feel terrible. I know with LDN, you do need to slowly work up to the 4.5 mg, for me it took weeks, but I wouldn't go without it now. Wish you the best, this is all so life changing, hope you find some relief!