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Vaginal cancer diagnosis

Gynecologic Cancers | Last Active: 6 days ago | Replies (7)

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@naturegirl5

@leahchawkins Yes, I can understand why you were very upset with your local gynecologist. I suppose that the majority of us who go to our gynecologist with complaints of bleeding and pink discharge when we are post-menopausal do not have cancer. But why not do a thorough physical exam to rule out cancer?

I live in a rural area and so my gynecologist referred me to Mayo Clinic which is 450 miles away. Within two weeks of the diagnosis from the biopsy I had a radical hysterectomy with removal of ovaries, fallopian tubes, and cervix. After surgery the cancer (endometroid adenocarcinoma which is slow growing and not very aggressive) was staged 1a. No other treatment was recommended after my surgery. Two years later a recurrence was found on the vaginal cuff by my nurse practitioner at Mayo Clinic when I returned for one of my active surveillance exams. She always does a thorough exam including external and internal with a speculum. I then had radiation therapy. I haven't had chemotherapy and since 2022 after I finished the radiation therapy there has been no evidence of cancer.

I recommend, if I haven't already done so, that when you see you gyn-oncologist that you bring someone with you. I bring my husband with me to all of my appointments as I need that extra set of ears and I need the support. I also write down any questions or concerns I have prior to my appointments.

I know how hard it is to wait. Will you please come back and let me know how you are feeling at any time? And especially after your appointment with your gyn-oncologist?

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Replies to "@leahchawkins Yes, I can understand why you were very upset with your local gynecologist. I suppose..."

Oh, I will! Thank you. When I first say the gyne/onc here at Mayo, I brought my best friend, who is also a nurse, as I am. She remembered so much more than I did, and she was with me when I had the biopsies under GA. It was interesting to hear what she heard the doctor say versus my husband's recollection. lol.
My son, daughter and DIL (besides my husband) will be coming to the 'reveal' appointment after the testing. So, between all of us, I hope we will have a clear idea of what the next steps are. If I have to have radiation, I will have it at Mayo and any other treatment. Sadly, I have lost faith in the local docs. Once the local gyne referred me to the one and only local gyne/onc (in town), I waited and waited, and finally I said screw this, and called Mayo (as I see a pulmonologist here already so I was in the system), and saw my new gyne/onc and had the biopsies under GA before my local onc ever called me back for an appointment. But I am grateful for him and for this group!!!!