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← Return to Life while being treated
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I've been super blessed when treating MAC (as an overachiever, I got to treat it twice in a 4-year span). I hiked parts of the Appalachian Trail while on the Big 3 and when I was on Arikayce and two of the Big 3, we took our travel trailer and went on a 6-week trip to Maine and Canada and did tons of hiking and camping. I am retired, so I didn't have to juggle work or children at home, which I have huge admiration for those of you dealing with those extra responsibilities!
But everyone is different in how they respond/react to treatments. There's lots of tips and tricks to manage side effects, and hopefully if you do have some, you'll be able to work through them. Many people in my support group were like me, with little to no problems, but others did have to change or stop certain drugs.
Best of luck!!
Laurel
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Your experience is what I aspire to if I undergo treatment! Somehow, I've lived with this disease for years and aside from periodic annoying ("bad") cough (not every day) and occasional shortness of breath, I've led my life as I would have anyway. Can you say a little more about your situation? Why two separate treatments in 4 years, and are you testing negative now? Do you have bronchiectasis in addition to MAC? I ask because I have both. And, I'm very active and independent. I worry about vision damage especially; I live alone and my life would be undone if I couldn't drive or do things I enjoy like skiing, pottery, pickleball, piano, traveling.