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How are the super long-haulers doing 3 to 4 years out?
Post-COVID Recovery & COVID-19 | Last Active: 1 day ago | Replies (116)Comment receiving replies
Thank you. Yes I am all too familiar with PEM, unfortunately. I am going on 4 years now, and the PEM crashes are worse today, so I really need to focus on pacing, which for me is the hardest thing I have to do. I think I am getting better and then I do too much and it hits me. The last 8 months has been a lot harder because my wife is going through treatment for ovarian cancer, so I find I have to really do daily meditation, deep breathing, progressive muscle relaxation and pacing.
I have not checked out his site - I will check into that as well - thanks.
One resource that I had used to gently provide to my PCP was the Bateman Horne Center. It is more targeted to the medical community, but still somewhat useful.
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P.S. - Yes...Bateman Horne Center is a great resource too. But, overall, I love Gez Medinger's site. He's so down to earth and is going through it also. Bless him for sharing it all with us.
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I so relate to what you're going through. And...am sending a big hug for you and one for your wife too.
I have found that yoga nidra meditations really help me. However, when I'm going through a PEM, only rest seems to work.
I take, specifically, Astragalus and L-Carnosine which have helped with muscle strength and energy...and most recently (in the afternoons) ATP. All of which help a tiny bit during PEM...but, resting seems to be the best. (PEM is the worst...)
I'm going to try to see if resting before an event will actually allow me to participate. Fingers are crossed. My extended family invited me to Easter brunch and I'm going to see if I can do it by doing practically nothing for about 3 days before. (I get PEM from both cognitive and physical exertion).
I'm afraid to do 'progressive muscle relaxation' because it involves the use of energy when 'tensing'.
Gosh...and to think: I used to hike all over the nearby Sierra Nevada Mountains! Those days (sadly) are behind me.
My best to you and your wife.