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DiscussionRelationship between bronchiectasis and cystic fibrosis
MAC & Bronchiectasis | Last Active: 3 days ago | Replies (31)Comment receiving replies
Replies to "I was diagnosed with non-CF bronchiectasis about 10 years ago. Last year after looking at my..."
I started searching yesterday and found that Alyftrek (Elexacaftor/tezacaftor/ ivacaftor), which is basically the same, if I am understanding correctly, as Trikafta, is now approved for 31 more CF mutations. If you look this up, you can tell which mutations qualify you. It might be worth looking at this especially if you already have the diagnosis of CF.
How high were your numbers.l? I understand that as you age the number that indicates a definite CF diagnosis goes up.