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@peggyri

I was diagnosed with non-CF bronchiectasis about 10 years ago. Last year after looking at my CT scan, my new pulmonologist recommended that I get tested for CF. First I was given the sweat test, and the numbers were high enough to make the diagnosis likely and warrant genetic testing, which confirmed CF. Unfortunately I do not qualify for Trikafta because of my particular genetic mutations, but I'm still relieved in a strange way to have a definitive diagnosis of a disease I've had my entire life.

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Replies to "I was diagnosed with non-CF bronchiectasis about 10 years ago. Last year after looking at my..."

How high were your numbers.l? I understand that as you age the number that indicates a definite CF diagnosis goes up.

I started searching yesterday and found that Alyftrek (Elexacaftor/tezacaftor/ ivacaftor), which is basically the same, if I am understanding correctly, as Trikafta, is now approved for 31 more CF mutations. If you look this up, you can tell which mutations qualify you. It might be worth looking at this especially if you already have the diagnosis of CF.