The link takes me to a “ not found oage”?

@sueinmn I’ll see what I can do here. I’d definitely share with everyone if I can get any information.

I was in the above clinical trial Sue mentions above NCT05743946 last August at Emory University. I was diagnosed in 2019 with bronchiectasis and have a great niece with CF who has been on trikafta for 6 years (is s game changer for her). In late 2023 my niece encouraged me to be tested for CF since my symptoms were so similar to my nieces'. I tested medium range for sweat chloride and have the 508del mutation ( which is the disease causing mutation) . The CF pulmonologist decided to prescribe trikafta but insurance denied because of no formal CF diagnosis. I have excessive mucus and exacerbations, and do not have the time or energy to do the necessary airway clearance due to a very demanding job. To make a long story short, the trikafta was a huge game changer for me the month I was on it . Within 24 hours the mucus and coughing stopped. I felt like a new person. Within 24 hrs of going off it, I had a wash out period and it all started again. The trikafta definitely works. Now I am really stuggling again with my regular non cf pulmonologist. From what I have heard regarding the preliminary findings of July 24, the three people who were worse off than me and were in the clinical trial all had hugely promising results just like me. I pray that that another pharma will make the generic version of trikafta once Vertex' patent is expired. But for now I continue to struggle with nebulizing saline acetylysteine, and airway clearance, which is so time consuming and so exhausting.

Link went to a “not found” link for me also.