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How are the super long-haulers doing 3 to 4 years out?
Post-COVID Recovery & COVID-19 | Last Active: 3 days ago | Replies (88)Comment receiving replies
Glad you felt so too! I've been with him for about 3 years - whenever he started posting. He was at that time the only person who spoke my language...fatigue and PEM (post-exertional malaise). I sent links to his site to my PCP which he really appreciated.
Good luck to you, Mac6169
Replies to "Glad you felt so too! I've been with him for about 3 years - whenever he..."
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Thank you. Yes I am all too familiar with PEM, unfortunately. I am going on 4 years now, and the PEM crashes are worse today, so I really need to focus on pacing, which for me is the hardest thing I have to do. I think I am getting better and then I do too much and it hits me. The last 8 months has been a lot harder because my wife is going through treatment for ovarian cancer, so I find I have to really do daily meditation, deep breathing, progressive muscle relaxation and pacing.
I have not checked out his site - I will check into that as well - thanks.
One resource that I had used to gently provide to my PCP was the Bateman Horne Center. It is more targeted to the medical community, but still somewhat useful.