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How are the super long-haulers doing 3 to 4 years out?
Post-COVID Recovery & COVID-19 | Last Active: May 4 1:08pm | Replies (116)Comment receiving replies
Glad you felt so too! I've been with him for about 3 years - whenever he started posting. He was at that time the only person who spoke my language...fatigue and PEM (post-exertional malaise). I sent links to his site to my PCP which he really appreciated.
Good luck to you, Mac6169
Replies to "Glad you felt so too! I've been with him for about 3 years - whenever he..."
Yes on debilitating fatigue and PEM and feeling "heard". Good idea about sending the links. My PCP is great but my pulmonary rehab folks in the "Long Covid Clinic" might be able to use. Thanks and good luck to you as well.
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Thank you. Yes I am all too familiar with PEM, unfortunately. I am going on 4 years now, and the PEM crashes are worse today, so I really need to focus on pacing, which for me is the hardest thing I have to do. I think I am getting better and then I do too much and it hits me. The last 8 months has been a lot harder because my wife is going through treatment for ovarian cancer, so I find I have to really do daily meditation, deep breathing, progressive muscle relaxation and pacing.
I have not checked out his site - I will check into that as well - thanks.
One resource that I had used to gently provide to my PCP was the Bateman Horne Center. It is more targeted to the medical community, but still somewhat useful.