← Return to Treatment after prostatectomy

Discussion

Treatment after prostatectomy

Prostate Cancer | Last Active: 3 days ago | Replies (25)

Comment receiving replies
@clubits

Thanks for your reply. His doctor here said, he has never seen a decipher that high, and initially was shocked on his high Gleason for his age. We tried calling twice to Mayo for second opinion last year and then again this year. Was told they wouldn’t even talk with him until psa was at .4 and they had no clue when I told them about the deciphering score. She said…I don’t know anything about that. Well now he’s at .46. Seems odd Mayo had no clue about a deciphering. Gal was not friendly and I felt she was irritated with me calling wanting a consult. So we are thinking if Mayo is not concerned, are we doing the right thing with tx.

Jump to this post


Replies to "Thanks for your reply. His doctor here said, he has never seen a decipher that high,..."

The Mayo response you received is not usual. Hopefully the moderator or another person on this forum can help you get in contact with a person at Mayo (or any other PC center of excellence) that can get your husband the best treatment possible. Now.

Sometimes it unfortunately takes aggressive action to eventually get to the right people that will better care for your husband.

His condition warrants the best available treatments and there are doctors at Mayo ( and other PC centers of excellence) that will be able quickly guide you and he through those next decision steps.

He quality of life can get better!