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@leahchawkins It's so frustrating that your local gynecologist did not investigate thoroughly when you first came in with the slight bleeding/light pink discharge. Will you be getting the PET/MRI at Mayo Clinic? If yes, then in my experience when I had that scan a few years ago I received my results very quickly. The results were posted on my Mayo Clinic patient portal and my nurse practitioner who ordered the PT/MR (she consulted with the gyn-oncologists in the department about which scan to order for me) called me and we talked about the results. My impression is that the reason for the PET/MR is to see if there is cancer in other places in your body. I hope that isn't the case for you and that the cancer that was diagnosed is local to the vagina.
I was diagnosed with endometrial cancer (endometroid adenocarcinoma) and did not have vaginal cancer.
I am tagging @rainyp @savypaige25 @jabrown0407 @jeanadair123 @joni66 who reported here on Mayo Clinic about their experiences. I hope that they will respond here and offer their experiences and provide you with support.
Have you been referred to GYN-Oncology? If yes, you can ask them about the length of time before you get your PET/MR results back.
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Thank you for your reply, Helen. I will have the PET/MRI on the 10th of April and will see my gyne/oncologist the next morning. So, thankfully, I won't have to wait too long. Did you have to have surgery, radiation or chemo??
Yes, I was very upset with the original gyne in my hometown. She is young and when she finally did a speculum exam/biopsy said that she had never heard of vaginal cancer as it is so rare. But I have read that this type of cancer is slow growing, and I will hold onto the possibility that it is not too invasive.