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Life while being treated

MAC & Bronchiectasis | Last Active: 23 hours ago | Replies (44)

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@wangling

Hi Sue, I wish we can all achieve this.
You only need to do airway clearance once a day and neb saline when you have exacerbations. I am curious what this decision is based on? Is it based on how much mucus you produce? How long have you been practicing this?

Ling

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Replies to "Hi Sue, I wish we can all achieve this. You only need to do airway clearance..."

Well, I have explained the progress before, but cannot find the post.

In December 2019, my CT was stable (improved from when I started the Big3) and 2 of 3 cultures were positive, but the bacterial load was down from before starting meds daily 6 months earlier. I was very sick and weak from the meds, so we stopped them.

For 2 years I did twice daily airway clearance with 7% saline and produced less and less sputum. My lungs stayed the same, and 50% of cultures were negative. My biggest issue was poorly controlled asthma, which caused daily coughing fits, SOB (shortness of breath) and about 3 respiratory infections a year. Then my pulmonologist tried Symbicort and it was a game-changer right away. Lost the cough, NO exacerbation, improved breathing - in spite of caring for young grandkids for a whole year. I switched to once a day saline and airway clearance and had another year with no exacerbation, then gradually reduced saline to 2-3 times per week with pulmonologist's okay. I still do daily airway clearance.

In September 2024 I got Covid for the first time, with a mild exacerbation managed by one course each of steroids and antibiotics. It was also determined that my remaining SOB was due to a heart blockage and not my lungs. My November CT was still stable, not sure about NTM status as I couldn't produce good specimen. At our appointment in December we talked at length and decided to try a "vacation " from the saline, but continue airway clearance and Symbicort. We're at 3 months now, I had one week of "feeling off" where I used saline every day and got better. We meet again at the end of May and will decide whether to go back to saline or stay as is. I won't have any issue producing sputum then - it will be allergy season, when I produce plenty of mucus.

As to how much mucus I produce - it varies from maybe a couple teaspoons to lots when I have an infection. In fact, the increase alone signals me to grab the nebulizer.