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Relationship between bronchiectasis and cystic fibrosis

MAC & Bronchiectasis | Last Active: 2 days ago | Replies (31)
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@jnmy

@sueinmn
Thanks Sue. I actually meant Bronchiectasis specialists that might be more involved with or knowledgeable about current research into drugs like Trikafta.

I agree though, more testing would be helpful. For those who have a negative diagnosis for CF but are right on the margins, there might be benefit?

Maybe value for others too when someone can’t physically do clearance for a period of time.

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Replies to "@sueinmn Thanks Sue. I actually meant Bronchiectasis specialists that might be more involved with or knowledgeable..."
Sue, Volunteer Mentor | @sueinmn | 4 days ago

I did a little digging and found one nearly completed research study. You may want to contact the principle researcher and ask to be notified when the results come out:
https://www.centerwatch.com/clinical-trials/listings/NCT05743946/trikafta-for-patients-with-non-cystic-fibrosis-bronchiectasis/trikafta-for-patients-with-non-cystic-fibrosis-bronchiectasis
If you learn anything exciting will you share it with the group?

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