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Any successful experiences with GemAbrax after awful side effects?
Pancreatic Cancer | Last Active: Apr 5 2:48pm | Replies (21)Comment receiving replies
My husband's neuropathy is horrible also. Started with toes/fingers when on folfironox, but much worse after 5 months on gem/abrax. He tried doing the ice treatment during abrax infusions. So, either that didn't work, or else the neuropathy would have been even worse without it. He tried gabapentin for a long time. Then tried doloxitine, and wasn't helping. He started using a walker about a week ago as he is so unstable when walking on numb feet/calves. Chemo has now stopped, so it will be interesting if things improve with his neuropathy. Luckily he did not get sick with his low WBC. Hope the gabapentin works for you!
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I had a several month break between the cessation of the Folfirinox and the start of the Gem/Abrax. During that time, I was accepted for an NIH study in Bethesda for people with acinar cell pancreatic cancer who also had the BRCA 2 mutation. They put me on Olaparib, and it was not effective due to the only remaining tumor visible on the PET/CT scans being the one that the VA doc discovered had developed the reverse BRCA 2 mutation. After 3 months going to the NIH, they saw growth of the thing and I was released from the study. I did notice some lessening of the neuropathy at the end of that break. But it's worse than ever now after having these Gem/Abrax. sessions. My heart goes out to your husband as I know how he feels. Hopefully, after a couple months he'll notice some improvement in the neuropathy after he's off chemo. I just noticed this morning that the VA posted on my account the results of my blood test before the Tues. chemo session and my WBC was right in the middle of the acceptable range. Never happened before but I'll take it. Swimming has always been my preferred exercise but both of the YMCA's I went to seem to be the places I pick up a bug. I wish healing to your husband, ma'am. Thanks for the input.