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Pancreatic NETs: Looking to connect with anyone with insulinoma
Neuroendocrine Tumors (NETs) | Last Active: Mar 21 4:18pm | Replies (86)Comment receiving replies
For all who are interested in learning about a new treatment for pNET, here is a link to an article from the FDA website that introduces a newly approved drug:
https://www.fda.gov/drugs/resources-information-approved-drugs/fda-approves-cabozantinib-adults-and-pediatric-patients-12-years-age-and-older-pnet-and-epnet
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@hopeful33250
Based on weight I should be taking 60 mg. That's a high dose to tolerate though, and the doctors started me out on 40 mg, probably to see if that would be effective. So far it's working (8 months) but I have to be realistic, as half the people in the pNET study (49 of 99) are no longer with us. My oncologist said he was "hoping for a couple years" and that was last summer.