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Grade 3, poorly differentiated duodenal NET metastasized to liver-
Neuroendocrine Tumors (NETs) | Last Active: Jul 21 9:56am | Replies (15)Comment receiving replies
I just finished my first 2 week cycle of CAPTEM a week ago and to start my second cycle after a 2 week break. It is heartening and inspiring for me to note that it is working for you. I am hopeful your follow up scan will show it is still working for you. Thanks for sharing
Replies to "I just finished my first 2 week cycle of CAPTEM a week ago and to start..."
Hi @andre123. Just following up. How are things going with you?
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Thanks for the kind thoughts. My scans were good last week. No growth. Everything was stable. We are moving forward with scans around every six months. Folks frequently ask if I am afraid that the capecitabine maintenance will stop working. My honest answer is that I don't think about it. I can only work with the facts of my treatment and results. It is working, so I will stay the course. I know the mean for the long term efficacy is about 2 years for the CAPTEM/capecitabine treatment. I started CAPTEM over 2.5 years ago. I have done over 30 cycles combined. But my quite articulate doctor stating things quite simply, "If it ain't broke, don't fix it." This cancer has taught me one thing; there is no normal. Sometimes you just have to roll with it. This time, it appears that I might have caught a break. YAY!!!!