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Grade 3, poorly differentiated duodenal NET metastasized to liver-

Neuroendocrine Tumors (NETs) | Last Active: Mar 31 12:43pm | Replies (14)
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@andre123

I just finished my first 2 week cycle of CAPTEM a week ago and to start my second cycle after a 2 week break. It is heartening and inspiring for me to note that it is working for you. I am hopeful your follow up scan will show it is still working for you. Thanks for sharing

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Replies to "I just finished my first 2 week cycle of CAPTEM a week ago and to start..."
Turkey | @tomrennie | Mar 31 12:20pm

Thanks for the kind thoughts. My scans were good last week. No growth. Everything was stable. We are moving forward with scans around every six months. Folks frequently ask if I am afraid that the capecitabine maintenance will stop working. My honest answer is that I don't think about it. I can only work with the facts of my treatment and results. It is working, so I will stay the course. I know the mean for the long term efficacy is about 2 years for the CAPTEM/capecitabine treatment. I started CAPTEM over 2.5 years ago. I have done over 30 cycles combined. But my quite articulate doctor stating things quite simply, "If it ain't broke, don't fix it." This cancer has taught me one thing; there is no normal. Sometimes you just have to roll with it. This time, it appears that I might have caught a break. YAY!!!!

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