Atypical Lung NET treated with radiation: What was your outcome?

Posted by marieritzman @marieritzman, Sep 11, 2023

Has anyone had this LNET treated with Radiation and what was your outcome?

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

@aliciabusiness5

I was diagnosed with stage 3 atypical carcinoid in dec of 2023. Ki-67 number was 5. In January 2024 I had 1.5 lobes removed from my left side and 13 lymph nodes removed. In May 2024 is was given a clean bill of health.
In August 2024 I was flagged as having a liver cyst. At this time, my 3 month checkup changed to 6 months.
In February 2025 my ‘cyst’ biopsy showed my lung carcinoid had metastasis to the liver. My .6mm cyst magnified to (4) 2-3cm tumors and dozens more spread out across all liver quadrants. The ki-67 number is now25 average with 40 in hot spots. My local oncologist suggested radiation is not good for the liver and is proposing an embolism for the largest tumors without a suggestion for the smaller tumors.

Maybe there are other/additional things for me to try?

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Scary and wishing you the best. Keep us posted. It could be one of us next

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