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Anyone having luck while taking methotrexate?

Polymyalgia Rheumatica (PMR) | Last Active: Apr 1 2:25pm | Replies (15)
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@dadcue

@mtr2601

"I am now finally off the Prednisone."

"It's all a gamble and you have to weigh up the risk/benefit for you personally."
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I'm glad HCQ works for you and that you are off prednisone. I used to think prednisone was the only option until something else worked better. The bottom line ... whatever works for you personally is a good thing.

I had mixed results from MTX but I wouldn't have known if it worked for me or not had I not tried it to see if it worked. You are right that everything that is tried is a gamble.

Do you feel better being on HCQ and off prednisone?

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Replies to "@mtr2601 "I am now finally off the Prednisone." "It's all a gamble and you have to..."
mtr2601 | @mtr2601 | Mar 26 8:51pm

Hi, yes I do feel better on HCQ. I tried stopping it while I was still on 0.5mg Prednisone and noticed a difference in stiffness and brain fog within a few days. I went off it for a couple of weeks to see if things normalised but went back to the 200mg daily dose and started feeling better within the week. I am unusually sensitive to these ant-inflammatory meds, even the Rheumatologist had to admit this after initially chewing me out for being 'non compliant'. It's such a relief to kick the Prednisone. I don't think I could have done it without a major flare up if it wasn't for strict adherence to the celiac diet over the last 6 months. My CRP is still hovering between 9 and 12 so there is still inflammation and the hip pain is ever present but not limiting me too much. It has been quite a journey.

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