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Thank you, Kathy. I had never heard of BE until I was diagnosed. I have a flutter device and use it sometimes. I am going to take it with me to the pulmonologist when I go next month. I think I got it from breathing in smoke from Maple and Ash, a restaurant near my building. I can't prove it, however. What is NJH? Do you get infections often? I live at Camelback and Scottsdale Rd. I know where you live. I really appreciate your feedback. I stumbled on the website and am so glad I did. Hope you're having a good day. Roz
Replies to "Thank you, Kathy. I had never heard of BE until I was diagnosed. I have a..."
Generally, we use the Aerobika or Acapella 1-2x a day. It seems no sputum or small amounts daily (I’m in no sputum group) are allowed to do it once daily. People who are bringing up sputum, need to get the sputum out since it’s a breeding ground for infections. They do it twice a day, every day.
We usually do it after nebulizer albuterol and/or hypertonic saline.
The video mentioned by McSwane has great info.
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Hi Roz,
Good idea to take the flutter valve with you. Yes, I get infections at least 2 times per year. NJH is National Jewish Hospital in Denver. I'm not sure of its current ranking but over the years has been considered the number 1 pulmonary clinic in the US and maybe the world as well. My sister who had severe asthma went to the NJH hospital back in the 1960's and we lived in Wisconsin. Do you go to Mayo?
Have a nice evening!
Kathy