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Husband doesn't know who I am more and more
Caregivers: Dementia | Last Active: 3 days ago | Replies (15)Comment receiving replies
bclane
I totally understand your grief. My husband has Alzheimer's and I care for him at home. There are many things that he does that are exhausting but the most heart-breaking thing is when he does not know me and when I bring up things that we have done in our lives, but he doesn't remember. To witness my husband leaving me, cell by cell is so awful. At the same time that I am losing him I am also losing myself. It is difficult to explain to people who are not living through this what it is really like.
I am so sorry that you are going through this horrible journey too.
Katrina123
Replies to "bclane I totally understand your grief. My husband has Alzheimer's and I care for him at..."
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Cell by cell…that's an accurate way of describing it. It seems it gets worse every day and I'm usually surprised by some new manifestation of the change. I remember caring for people who had dementia when I was a nurse, but it's a lot different when you live with someone with it 24/7. My husband's is a result of multiple TIAs and one bigger stroke, but he doesn't have any physical problems due to the strokes, and I'm thankful for that at least. I hate that you feel you are losing yourself, too, but I know what you mean. And only people like us going through it can know what you mean.