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MAC & Bronchiectasis | Last Active: Mar 29 9:10pm | Replies (35)
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Hi,
My diagnosis of BE is not even a year old. I crave ice chips, and substitute chewing on them for sugar. I do see a local pulmonologist here in Scottsdale. I am wondering if you are still in Arizona and are treated at Mayo. My pulmonologist said I should use an air clearance device but was not specific about how much or how often. I don't have many symptoms yet, but I would like to prevent as much as possible. I am almost 84 years old, walking over 3 miles daily. I am grateful for any suggestions from people who have been dealing with BE longer.
Thank you. Roz
Replies to "Hi, My diagnosis of BE is not even a year old. I crave ice chips, and..."
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Hi Roz,
I'm in Scottsdale as well. Unfortunately, Mayo is not in network with my insurance. You sound to be in great shape. Walking 3 miles per day is phenomenal. I wish I could say the same. I am quite busy during the day, so time is the biggest factor for me. I used to use a Flutter valve device and when that wore out, I switched to the type with the balls. I liked the flutter valve much better. I think it's a personal preference. I have been very neglectful and just doing the airway clearing exercises. I would like to get back to spirometry exercises and find one that can be cleaned for inverse spirometry (working on inhale). The ones I've seen, can't be taken apart and cleaned. I live a little east of 101 and Cactus. It's very important, to quickly remedy lung infections and inflammation. When I moved here from Colorado, the first pulmonologist I had told me that bronchitis is viral and she would not give me antibiotics. My doctor at NJH told me whenever I got sick, to get on antibiotics. So I believe my bronchiectasis got worse due to chronic lung infections that were not dealt with. My new Pulmonologist gets me on antibiotics quickly-as soon as I get an upper respiratory infection.
Kathy