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severe nerve pain in feet. EMG was normal. Is not neuropathy
Neuropathy | Last Active: Mar 29 4:16pm | Replies (19)Comment receiving replies
I just found this conversation because I am looking for relief. I have exactly the same issues as nancy777.
I see the post is older but wondering if any new treatments or advice.
I plan to see a neurologist. I have seen a podiatrist and Rheumatologist. Both say I have arthritis in my big toes but the pain I have points to neuropathy. Even being under a light sheet on my bed causes painful sensations to one foot but both painful most of the time. I can't find socks that don't feel tight and restricting. My hoka sneakers and ryka shoes are the only shoes I can wear for short periods.
I am 65. I am not diabetic. I have had injuries to my toes in the past.
Thank you for any future comments.
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Hello jennic1960,
Wow, we do have a lot in common, but not in a good way. I am 74. I'll try not to repeat what I have already said, but I cannot view my post as I type this.
For socks, I found some I can wear! On Amazon. "Hugh Ugoli Women's Bamboo Loose Fit Diabetic Crew Socks, Soft, Wide & Stretchy with Seamless Toe & Non-Binding Top".
These are the only socks I can wear. I did not think they would work, but they do.
I also put store brand "Bengay" on my feet. It is mostly the menthol in it that helps, at Walmart, it is "Equate Pain Relieving cream" "compare to Ultra Strength Bengay".
Tried MANY meds for the pain (originally made for seizures, or antidepressants, but used for nerve pain also), most caused severe edema, or severe brain fog. a couple of them had no side effects for me, but also did nothing for the pain.
But, I did try something that helps some...it is a muscle relaxer, "Flexoril" (cyclobenzaprine) 10 mg. A.M and P.M. The first week I took them, it made me sleepy, but I stuck with it, and the sleepiness went away after a week or so. It helps some. The doctor told me he had heard of the cyclobenzaprine helping with nerve pain.
I was tested for circulatory problems, (veins, arteries, heart), but tests came back "normal", despite my feet turning purple, blue, or burning red in the evening.
Cold helps most of all, of everything I have tried. When the pain is unbearable in the evening, I resort to cold water with a few ice cubes. I keep the container of water out on the floor because it is difficult to get cold water from the faucet. But I limit it to about 30 minutes, because I saw photos on Mayo website of people who overdid it with the ice water and suffered tissue damage. (I saw that when I searched re "erythromelalgia" at Mayo website. One neurologist suggested "erythromelalgia" to me. Perhaps it is a cousin to it, but erythromelalgia is mostly "episodes", but mine is constant, increasing as the day progresses. I spend most of the day on the couch icing and elevating. Have large gel ice packs from Walmart "Equate Reusable Hot or Cold Large Compress, 8" X 12"".
I live in Florida, so not many cold days, but I am a little better when it is cold out.
I hope this helps you.