So sorry to learn about your dizziness problem. I have the same issue from Long Covid-since 2023. I do take LD Naltrexone mitered to 4.5 mg once a day. It seems to help with fatigue but not so much with dizziness, I'm afraid. for me what helps the dizziness is not overdoing activity. When it starts, I have to stop and rest for a while. I understand your concern about putting an extra burden on your spouse. My husband basically does almost everything. I can do my own laundry and our towels and linens, do dishes once a day and I also pay bills. But he does the grocery shopping, makes dinner, and takes care of our outdoors. We have a housecleaner come twice a month; my husband usually vacuums as needed. I hate feeling like I'm not doing my share. Fortunately we are both retired. Good luck with the LD Naltrexone -having more energy does seem to keep the dizziness at bay.
longer

I meant LD Naltrexone compounded to 4.5mg, mot mitered

Thanks for sharing your experiences. It helps me understand what I might expect.

My loved one has taken it several different ways. The cheapest way was her her to get a syringe and mix capsule contents with some water but she said it tasted awful.

We were able to get a compound pharmacy to make it in varying doses per bottle so she can adjust the amount she takes based on her symptoms.

The dizziness is helped by working with the POTS cardiologist and mostly she takes low doses of midodrine & beta blocker for that.

Hello,
I started taking Low Dose Naltrexone (LDN) probably 5 years ago. I take it fibromyalgia and Chronic Fatigue. I believe it helps tremendously with the Fibromyalgia; I think the side effect on not having constant debilitating muscle and joint pain translates into less fatigue. When I had Covid in November 2023, I went to Mayo Clinic, the long covid program a number of months later. I was asked about taking the LDN, was it helping my Long Covid. I said I couldn't tell because I was on it before I got long covid. I believe that it does help, because I have not experienced a recurrence of pain. Fatigue increased for months, but that is more manageable now. Unfortunately, I don't think it helped with the dizziness, I agree that not overdoing it and pacing myself is the biggest help with that. I am quite sure I would have pain and headaches if I were not on LDN. I went off it twice at my doctors request, and the Fibromyalgia and general pain, headaches came back, which brought back more fatigue. He said he just wanted me to test it to remember why I'm on it. I am on the recommended 4.5 mg. for Fibromyalgia, took me several weeks to get up to that amount. In my experience, it is rather benign drug, I have no side effects and very low dose and is amazing for me to keep me out pain. And I don't take any prescription medicine except a compounded thyroid med, because I get side effects from any I have tried.

My long Covid symptoms are mainly lymphedema of hands, feet, arms and legs. Been on low dose naltrexone for about 10 months. No improvement noticed.

Thank you for that info. I am encouraged after your comments.

Use the search function and you can find several other long threads about Naltrexone. I like Lucy found it very helpful.

Has anyone had severe muscle cramps on LDN?Started with 1 mg dose which caused dizziness and heart palpitations. Lowered to .1 mg and increased until
.5 mg but determined anything over .3 mg caused the muscle cramps. Have never heard of anyone else ever having any type of side effects from LDN. Definitely helped with pain but not fatigue. Thanks.

After restarting LDN (which I had taken prior to LC for autoimmune issues), I noticed an accelerated improvement in my parosmia. Still taking LDN, although not seeing much additional change….although my parosmia is now limited to just a few smells. Hoping tincture of time will take care of the rest!