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Profile picture for ckscoville @ckscoville

In my case the diagnosis of CF (after genetic testing) definitely changed treatment options. It was determined that I am eligible for treatment with a very expensive CF drug called Trikafta, and that drug has been a real life-saver for me. My constant coughing and struggles with mucus have almost disappeared. In an odd way, my CF diagnosis has improved my life and my outlook considerably -- at least my daily struggles with lung disease.

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Replies to "In my case the diagnosis of CF (after genetic testing) definitely changed treatment options. It was..."

Hi @ckscoville, I have BE/NTM and also recently had genetic testing that revealed a positive mutant CF variant gene. I'm about to start taking Trikafta. I'm eager for any benefits but I'm interested to know what side effects you've experienced so far. Thanks.