← Return to Diagnosis Frustrated: How you were diagnosed with NETs?

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Profile picture for sophiarose @sophiarose

I was diagnosed 5 years ago
Have multiple surgeries procedures and treatments done
My primary had yet to be found and according to my doctor it probably never will
I am currently on Octreotide
I found that what I eat effects my onset of side effects
Sugar causes sweating
Caffeine cause irregular heart beats
Dairy, fried foods, spicy foods and some fruits cause severe diarrhea
It took awhile but I have a list of do’s and don’ts
Good luck

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Replies to "I was diagnosed 5 years ago Have multiple surgeries procedures and treatments done My primary had..."

@sophiarose I see you are on Octreotide. Is it a once a month injection? Did you have irregular heart beats before taking the meds.? Does the diarrhea get better?