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What to do when they will not respond?

Caregivers: Dementia | Last Active: Mar 25 11:04am | Replies (4)

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@chis54

Thank you for your reply. I also was told to get out of the room by my husband. I have been going daily also and from what I understand he has not mentioned me once. I do not want him to forget who I am. However, I realize that at some time that is possible. I may call his social worker again because she still has not called me back.

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Replies to "Thank you for your reply. I also was told to get out of the room by..."

In my case I, and everyone else, thought our loved one would soon not remember anything. Well, years later they remember us all us well. I don't want to give you false hope but with this disease behaviors can change from bad to good and vice-versa in a very short period of time. Overall though, it's a processive disease that typically lasts years, which has given me in my particular situation an assurance that things are generally stable day to day, week to week, month to month, with the occasional negative behavior(s) that come and go.

Still, it's the one of the most difficult things I have ever had to go through. Definitely speak with specialists who know about your husband's particular condition. Second and third opinions are good. We have been very fortunate to have an aide that has exceptional abilities to bring out their best and keep it that way. However, we have had medical doctors who got it totally wrong. It can be so difficult but by asking different people you have good chance of getting towards the best the situation can be.