Anyone had salvage radiation therapy post-prostatectomy?
I had radical prostatectomy surgery back in the summer of 2011 and have recently experienced rising PSA levels. My PSA levels were never completely undetectable but have rises from an average of .08 to my most recent of .13 in the last 2 years. My urologist referred me to their radiation oncologist and he said that I was early for salvage radiation therapy last summer. I am hesitant to have the radiation earlier than necessary (if it is even necessary) as I am worried about side effects. I have no symptoms related to my prostatectormy and am nervous about the possibilities of having something to deal with after radiation. I am 68 years old.
Interested in more discussions like this? Go to the Prostate Cancer Support Group.
One last consideration….. go to the MSK website and use their nomogram to see what the results are after you answer the questions.
This might help with your decision.
I wouldn't want it any sooner than necessary. .2 was my trigger point and seems consistent with what others have stated. Some guys have zero issues. I had urinary and bowel issues. Meds for urinary urgency and Imodium once I was done for bowel issues. Ask for your needs to be met. No one offered me anything for urgency even though I told everyone about it. I eventually blew up twice in one day on the table and still had to ask for something. Wondering if that is the medical norm these days? Each of us have to find our own groove to prep properly. I would have loved to go to Mayo! In Va. and no Mayo is within easy reach.
@michaelcharles I’m also G9 non metastatic 62 yrs. I’m headed to surgery 3/26th at NYU Langone. I had one COE that wanted to do ADT prior to surgery but NYU suggested it messes up pathology etc. Anyway I’m hoping I get good margins but I’m being realistic. The ADT question as to when and how long is confusing. I hope I didn’t make a mistake by not starting ADT prior to surgery. NYU Surgeon felt he could get negative margins without it. No definitive answers in this game. Just worried about spread which so far hasn’t happened.. lmk what you think.
Personal and lay person comments:
I think that you are 100% fine for surgery w/o preop ADT.
My sense is that some surgeons/institutions have different preop protocols before RP.
I did not have ADT preop.
My response was directed to Salvage Treatment after recurrence, where the protocol often is radiation with or without ADT.
Best wishes for s successful surgery.
Langone in Mineola or NYC? My urologist for my bladder cancer is Dr Anthony Corcoran. Out of Mineola/Garden City…great doc.
@heavyphil Langone in NYC. Dr Taneja is surgeon, Dr Zelefsky is Radiation Oncologist.
9/2015, prostate removed. The cancer had been "missed" earlier. It was then determined the prostate bed contained some cancer. So, I had the seemingly typical 39 targeted beam radiation treatments of the surface bed 6 months later. The other stories here are common, such as having a full bladder prior to each treatment, etc. I can say, it wasn't terrible for me, but I do remember having fatigue the last quarter or so. Among other treatments I've has since that time, including the standard list of drugs, chemo, Pluvicto, etc., I had ARC targeted beam radiation (relatively new) to hit specific tumors with greater accuracy and less damage to surrounding tissue. Stay positive....
@mmmvegas, did you decide to move forward with salvage radiation? How are you doing?
I haven't decided yet. I really would like to put off the salvage radiation therapy as long as possible as I don't want to deal with side effects. I have an appointment with my urologist tomorrow and will also seek a second opinion. My concern is that the local urologist has their own radiation oncology center, and they may be wanting to treat me to increase their revenue.
I’ve just been told I have a small area with a positive margin after robotic radical prostatectomy. Apparently the prostate capsule had a small breach and after going in as a stage 1 came out a stage 3. So, now I’m wondering what is the exact protocol to proceed? How soon do I get a psa test, how soon do I get salvage radiation? Do I need to get another MRI? I’ve a million questions. What is the least invasive yet most effective type of radiation for positive margins? Any info is appreciated. Thank you.