@ash0587
I have had similar issues as you and can empathize with how hard it is to get doctors to connect the dots on all of your symptoms. I have bilateral carpal tunnel like you (just had surgery on the right a couple weeks ago) and my teen son has a bicuspid aortic valve.
It would be good to get updated bloodwork and full panels for thyroid ((TSH, T3, T4, TPO thyroid autoantibodies to check for Hashimoto’s), and iron (IRON, TRANSFERRIN, TIBC and % SATURATION). Are you working with a cardiologist, endocrinologist, rheumatologist, hematologist or neurologist?
Due to your symptoms in your neck, back, arms, elbows, wrists and hands, it would be good to see a neurologist that get EMG/nerve conduction studies of upper and lower limbs and the small fiber neuropathy skin punch biopsy due to widespread pain. You can take these results to an orthopedic spine specialist to get an MRI of your cervical spine to check for spinal cord/nerve root compression.
I was misdiagnosed for a long time when I had cervical degenerative myelopathy (spinal cord compression injury), spinal stenosis and degenerative disc disease. I had daily headaches, brain fog, neck/shoulder/back pain, arm/hand weakness and writing difficult my (would drop things), bladder control issues, heaviness in legs when walking, etc. I was finally diagnosed with Hashimoto’s thyroiditis, cervical degenerative myelopathy, small fiber neuropathy, iron deficiency due to heavy menstrual cycles, bilateral carpal tunnel, bilateral gluteal tendinopathy, bilateral partial hamstring tears, etc. This caused me chronic pain and depression. I fired one of my doctors who thought and treated me as if I was a hypochondriac due to my many symptoms when I was really dealing with a spinal cord injury causing many symptoms below my neck plus daily headaches.
Make sure to advocate for yourself and don’t give up pursuing proper healthcare and diagnosis/treatment.
Thank you so much for all of this info. I currently just work with my PCP for the pain stuff, and haven't had a neurologist in awhile due to not loving the group I have to use based on my insurance. I'll definitely look into working with a neuro again though. Thank you so much for all the suggestions, I appreciate it very much!