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Idiopathic Small Fiber Neuropathy Research

Neuropathy | Last Active: 5 days ago | Replies (141)
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@ray666

Hi, Diane

John cited a post I'd left a long time back about EB-N5. I might add asa brief footnote that as of today I have been using EB-N5 for nearly two years (wth my neurologist's blessing). My large-fiber PN (poor balance, but no pain) hasn't worsened in all that time (confirmed a short while ago by a second EMG). Is that thanks solely to EB-N5? I can't say. Something I'm doing seems to be serving me well and that pleases me.

I wish you success in your pursuit of good, lasting health!

Cheers!
Ray (@ray666)

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Replies to "Hi, Diane John cited a post I'd left a long time back about EB-N5. I might..."
drdianeschneider | @drdianeschneider | 6 days ago

Ray, thank you so much for your posting. I have not heard of EB-N5, so I need to discuss that w/ my neuro. Not eager for a 2nd EMG, though 🙂 . I have Small Fibre PN. You are blessed that it seems to have been stopped in its tracks... but of course we all hope for a return to normal feeling. My balance isn't too bad, but I hate the feeling of walking on bubble wrap!! Blessings and all good wishes for full healing... Diane

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