Glad to hear your daughter's treatment was world-class at Mayo Clinic. I'm also happy to hear she's not had any seizure activity since leaving the medical center and having her dose doubled.

adoptivemother, I get what you are saying about hanging onto any bit of independence that remains as a young adult. One of my sons turned 18 this year, and we are walking the tightrope of trying to let him learn to manage his own healthcare (e.g., we decided to have him go to this year's well-child visit by himself) while also providing guidance, a reminder once in a while, etc. Our son is definitely flexing his independence muscles, so we have to walk on eggshells a bit.

What would you think about asking your daughter, if the opportunity presents itself, if she'd be willing to call or message the doctor in her Mayo Clinic portal about meeting soon to discuss the results of her scans and any other outstanding topics related to her care?

I realize there may not be an opportunity to approach your daughter on this anytime soon, if she is not in a receptive frame of mind, not around, etc. Or, you may deem it best to not go the route of prompting her to do anything.

I also realize she may not be a phone caller. My 16- and 18-year-olds really don't call anyone - even to follow up on something my husband and I would deem important - but perhaps your daughter does.

I'd also like to introduce you to @simplepartialman1 @santosha @kb2014 @mofu @rloc @restisaweapon @royanthony. They may have input for you related to your 23-year-old daughter's epileptic condition and a PET scan that found hypometabolism.

Are you continuing to feel scared today, @adoptivemother?