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I have ovarian cancer

Gynecologic Cancers | Last Active: Apr 10 9:22am | Replies (179)

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@jenelleseaman

I was first diagnosed in 2010 as stage 3c ovarian cancer. Had a radical hysterectomy with debulking and then 6 cycles of carboplatin/ paclitaxol adjuvant chemotherapy. The cancer returned in 2014 and again and again…
I am up to the 8th line of chemotherapy. I am on carboplatin/ Caelyx at the moment. I have had 50 cycles of chemotherapy in total, I have the next in 2 weeks. Another PET CT scan will tell me if I’m done with the chemo, or not! My ca125 has not been higher than 10 for the last 6 years even when I have had cancer.
I’ve always said that every day is a good day, because it’s what God planned for you. There’s no such thing as a bad day. There are definitely hard days, but somehow I have always come out the other end knowing that I have coped, and sometimes even been blessed.
At the moment I’m wondering how much more of this I can cope with, and I’m praying that the scan this time will be clear. The question is also for how long? I keep trusting God for what He has in store for me. I am definitely a miracle, living as long as I have with the disease recurring so many times. My oncologist calls me his Champion! I know I give hope to others, even though my journey has not been a pleasant one. But as I have said, I have also been blessed along the way with successes that I would not have believed possible. My faith in the One True Living God is what keeps me getting out of bed, and teaching high school students every day.

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Replies to "I was first diagnosed in 2010 as stage 3c ovarian cancer. Had a radical hysterectomy with..."

Janelle, thank you for your reply! Question...if your CA125 never went above 10 how do they know when there is active cancer? How often have you had scans? I have my labs checked every three months but they aren't planning to do scans until I reach the one year mark from ending chemo in August. At first they said I'd have scans in six months but then they changed it to a year. My treatment is at Mass General Hospital in Boston so I am pretty confident in their expertise but it does seem that some medical centers do things differently.