Hi, @adoptivemother - as a fellow mother, I empathize with feeling scared about your daughter. This is especially challenging when you get some results back on a patient portal and may or may not know how to interpret them. I know that for me when I look at pathology or radiology reports, I know enough information just to be "dangerous." I never understand all the vocabulary in these online reports.

I would encourage you to call and speak to your neurologist's/epileptologist's administrative assistant or their nurse, requesting that someone on the team have a phone call or video chat with you at their earliest convenience to explain the results. I would guess that such communication is in the plans for the doctor and team, but it's perfectly fine to let them know you'd like to do that as soon as possible. I found for myself that I generally interpret my findings online as far worse than they really are, and I'm relieved when I speak with the doctor.

How's your daughter been doing symptom-wise since your visit to Mayo Clinic Rochester?