← Return to Lymphedema - new support group: Let's connect

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@colleenyoung

@kit75, this is a great idea and thanks for kick-starting this support group in the Cancer: Managing Symptoms group and Just Want To Talk group, which welcomes everyone experiencing lymphedema related to cancer and other conditions.

Let's start with introductions. Pull up a chair and share your experience with lymphedema.

@kit75 @lilypilly @janiebill @sandy8043, how about getting the ball rolling. What caused your lymphedema? What part of the body is affected? What tips would you share with others?

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Replies to "@kit75, this is a great idea and thanks for kick-starting this support group in the Cancer:..."

Thank you Colleen,

As I indicated I am new to lymphedema. I believe my lymphedema was caused by radiation to my pelvis. When I started having swelling in my legs, I would talk to my cancer doctors and they did not seem to know the cause of the swelling. Then they sent me to have a venous insufficiency test, which came back clear. They did suggest I wear compression socks to control the swelling. It took a while to finally get a diagnosis of lymphedema. Once I had a diagnosis, I could then see a physical therapist to do drainage massage and short-stretch compression bandages. The therapist helped reduce the swelling, but not sure what I should do since I am no longer seeing the therapist.

I wear my compression socks and try to do the exercises they suggest, but seems like there should be more effective things to do to control.

Since I am new, I don't have any helpful tips, which is why I was hoping this new group could offer suggestions from people who have been dealing with this for years.