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Leiomyosarcoma: What can I expect now?

Sarcoma | Last Active: 3 days ago | Replies (87)
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@jeshaw6801

Hi, this is Joanne,
My doctor didn't recommend them. I was familiar with GIST type of sarcoma and they always ask for genomic sequencing so I asked to have it as well And then because their is speculation that my r-LMS could have been from a parasitic fibroid (myeloma) I also asked for receptors identification.
Where was your wife's tumor? Mine generated from the mesentery
https://images.app.goo.gl/AcpjJBCAZFffC63s6
I had one clean scan post surgery and tomorrow I have a liver biopsy to rule out potential liver met.

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Replies to "Hi, this is Joanne, My doctor didn't recommend them. I was familiar with GIST type of..."
ctflyr | @ctflyr | 5 days ago

Hi Joanne...it was outside her uterus and hadn't impacted any other organs. Originally her surgeon suspected it was uterine cancer. My wife discovered it herself and had a ct scan, followed by surgery. Nothing about the tumor was known until the pathology was confirmed. Recent testing showed lung mets after 2 years of ned following her initial surgery. We're hopeful the Votrient will be effective. She has her quarterly visit to Mayo in a few weeks.
Best Regards
Chris

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