Prolia use for osteoporosis

Posted by mosheaff @mosheaff, 6 days ago

I have questions about the use of Prolia. I am a 55 year old woman who has been diagnosed with osteoporosis since I was 39 years old. I have been under the care of a doctor for my condition. My dead scans are very low, in some places like my neck it is a -4 my hips are - 2 . So I have been told I need to be on meds to build stronger bones. Nothing has helped. I did Forteo, then Reclast, tried Envinity but did not like it. Then my doctor talked me into starting Prolia. I did 2 treatments and then I stopped. I did not like how it made my teeth feel and I did not want to take the risk of loosing my teeth. But my doctor said stopping it this soon, I will surely loose my teeth. It has been 16 months since my last dose, I had a Reclast treatment last June. Recently I have had really bad arthritis pain in my neck and knee. I have some stiffness in my hips after sitting for a long time and very sore at night. It hurts to move when I am laying down. My doctor is starting me on a new medication that is like Forteo. It is called Tymlos.
I wanted to know if other people have taken Prolia and stopped and what has your experience been. Or anyone that is has used Prolia. I am
Not sure what to do. I am taking a lot of natural supplements to help as well. I recently started a new natural hormone cream, I take collagen, vitamin D and K with my calcium and have tried some knee patches with natural herbs to help with the pain. Only thing that really helps my pain are the pain meds Decflonac.
Thank you for your comments.

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My doctor recommended that I go on Forteo/Tymlos, Evenity or Prolia. I did a search on drugs.com for osteoporosis drugs, all of these will showed up, along with their "recorded" efficacy. If you click on the number of "reviews" on each drug, you can read detailed experience "comments" from those who took them, including those who quit taking them for whatever reason. Just remember, you only see what has been reported, so you have to consider their are many that took these drugs and never reported their experiences.

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I was on Prolia for one year. The bone density test taken afterwards showed no improvement. I have since broken my other hip from a fragility fracture.

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I fell and suffered a fragility fracture, requiring a total hip replacement, after 4 injections of Evenity.
Tymlos, if you can get Insurance to pay for it , (I could not) seems to be beneficial. Based on the experience of a male, approx 50 years old with osteoporosis.
I believe Hormones may be the way to go for me.

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My understanding that after stopping prolia, your bones will begin to demineralize as the medication leaves your system, and your bones will be in worse shape than when you started. I read that you were supposed to take another medication to lock in the prolia medication, so it doesn’t leave your system

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@missey

My understanding that after stopping prolia, your bones will begin to demineralize as the medication leaves your system, and your bones will be in worse shape than when you started. I read that you were supposed to take another medication to lock in the prolia medication, so it doesn’t leave your system

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I was told that when Prolia is discontinued- any progress made will be lost! How discouraging. I suppose a new Osteo drug must be started.

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Hi, I am supposed to take my 4 th Prolia shot this week, but I am also very nervous as I can see already some teeth issues and I have other health issues too. What do you think? Can I stop it now?

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@savvyme1

I was told that when Prolia is discontinued- any progress made will be lost! How discouraging. I suppose a new Osteo drug must be started.

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Yes, you need to bookend it with another drug, a bisphophate, for example, when you go off it. All my MDs want to move me to Prolila, yet I hesitate. So far, I am fine with my bisphophate - no bone issues. They note that as I am going into the "aging rapidly" phase of life, I am almost 70 now, that Prolia will have been the smart move, looking in the rear view mirror. Mayo Clinic's webpage on either Prolia or Osteoporosis says something along the lines that Prolia is for severe or hard to treat osteoporosis. I am still mulling thing over. I don't feel I am severe yet. And I think MDs really like Prolia. For me, it is less invasive to take a weekly pill than to remember, upon pain of massive bone loss, to hike in for an injection two times a year.

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@umauma

Hi, I am supposed to take my 4 th Prolia shot this week, but I am also very nervous as I can see already some teeth issues and I have other health issues too. What do you think? Can I stop it now?

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My understanding is that when you stop probably unless you use another medication to lock prolia in place, your bones will demineralize because it leaves your system. This is not something the doctors tell you when they prescribe it to you! Do your research. Look at scientific studies that are pure reviewed regarding this matter.

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@researchmaven

Yes, you need to bookend it with another drug, a bisphophate, for example, when you go off it. All my MDs want to move me to Prolila, yet I hesitate. So far, I am fine with my bisphophate - no bone issues. They note that as I am going into the "aging rapidly" phase of life, I am almost 70 now, that Prolia will have been the smart move, looking in the rear view mirror. Mayo Clinic's webpage on either Prolia or Osteoporosis says something along the lines that Prolia is for severe or hard to treat osteoporosis. I am still mulling thing over. I don't feel I am severe yet. And I think MDs really like Prolia. For me, it is less invasive to take a weekly pill than to remember, upon pain of massive bone loss, to hike in for an injection two times a year.

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I'm 74 and have been on Prolia for about 15 years (with a three year gap, during which time I. had bone loss). My doctor specializes in bone health and plans to keep me on Prolia. She said she would make different choices if I was in my 50's. I have had great success building bone and now have osteopenia. I didn't have severe osteoporosis, but I was clearly losing bone mass and Prolia has done a great job. I don't find it that difficult to get two shots a year, given the positive results.

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