← Return to Looking for People Diagnosed w/Autoimmune Autonomic Ganglionopathy

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@silvanaborowski

My husband was diagnosed AAG 3 months ago and they didn’t start any treatment yet because he also has something wrong with his thyroid and they still investigating and trying medicines. His symptoms are severe. He has internal tremors, agonies on his legs and arms, irritability, confusion that make him wanting to kill himself. It’s been the worst time of our family’s life.
We went to several doctors. He is 49,eats healthy, can’t exercise now but before he always did. Everything is so slow. Does anyone knows a treatment that really works?

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Replies to "My husband was diagnosed AAG 3 months ago and they didn’t start any treatment yet because..."

I have read your post and wanted to share mine. I have Long Covid, no taste or smell since having Covid in December of 2022. I also suffer from Hashimoto’s and Hypothyroidism. Could it be possible that you also have Hypothyroidism? This could explain the internal tremors and your slowed movements and muscle issues. I would actually get severe cramps in my upper thighs that would almost make me pass out. I began taking Synthroid for my thyroid condition after having a blood panel run on my thyroid and those symptoms went away. Over time, my tremors and fatigue lifted. If you have a general doctor who will run a Thyroid Panel, have your TSH, T3-free, T4-free, Antibodies and Thyroglobulin levels run. If you’re hypothyroid, your levels will be high and you’ll need medication to level out. I hope this did some good and I wish you good luck and good health!